Friday, May 30, 2014

Tales From the NICUI - PART II


Stories from the preterm birth of our daughter, Madeline, in May 2014 -- from my water breaking and hospitalization at 30 weeks, to her birth at 32 weeks, to our 38 day stay in the NICU.

 
30 MAY 2014 - TWO WEEKS

 
Little Madeline is two weeks old today! (Whoa, time flies! I get the feeling that things are going to start moving very quickly from here on out.) She weighed in at a whopping 4 pounds, 6 ounces last night, and is doing remarkably well.

Maddie has her own crib now, and is finished with most of her major medicinal treatments (antibiotics, bilirubin lights, etc.). The past week has been largely about finding the right balance of oxygen and air pressure to most effectively help her tiny lungs expand and strengthen. She eats exclusively breast milk, and is fed primarily through a feeding tube. She is also learning how to breast feed, and we are all very impressed with how well she’s doing! Her nurses are calling her a “power preemie.” From here forward, her biggest hurdle will be building up the stamina to feed herself without assistance (which may take several more weeks).

Madeline is a very alert and curious baby. She has longer and more frequent periods of wakefulness, and seems to get more beautiful each day. She has a consistent stream of visitors who come to meet her, is steadily meeting all of her grandparents, and will even get to meet (one of) her great grandma(s) next week! We are forever fascinated by her. What a remarkable thing to witness the growth and development of such a tiny, perfect new life!

The NICU experience is a unique and challenging one. Jake and I find ourselves constantly trying to strike that delicate balance between taking responsibility for what’s ours to do, and letting go of what’s not. It’s easy to begin to feel as if we are not her primary caretakers, since she is so well-attended by her nurses. On the other hand, there are so many important things that only we are able to do for her. We each spend several hours each day snuggling with our daughter, skin-to-skin, which is arguably the most important medical treatment she’s receiving. We are also heavily involved in her care (changing diapers, taking temperatures, etc.)

Self-care is beginning to look quite different for us than it ever has in the past, and it’s a huge adjustment; there’s a constant choice between sleeping and eating, it seems. Patience is a necessity in here, and can be difficult to come by – I find myself having, on average, one small meltdown every day (be it from frustration, worry, or just plain exhaustion), which seems to help.

With that said, we are nothing if not eternally grateful for our many good fortunes, and for the health and safety of beautiful little Madeline.
There was a brand new baby brought in to the unit yesterday, and I saw her mommy sitting in her wheelchair next to the table holding hands with her and was instantly moved to tears. I will never in my life forget what that moment was like. What a powerful moment that is, and what an enthralling journey it is from that moment forward -- really, what a miracle!

As always, we thank God for the gift that is baby Madeline, and our friends and family for their continued love and support.

Saturday, May 17, 2014

Tales From the NICU - Part I

Stories from the preterm birth of our daughter, Madeline, in May 2014 -- from my water breaking and hospitalization at 30 weeks, to her birth at 32 weeks, to our 38 day stay in the NICU.


17 MAY 2014 - DAY ONE
Good morning! Here's the little one without anything on her face today!


We had a great night, and Madeline is doing beautifully. Her breathing tubes were removed, and she looks so far like she will need much less assistance.

Since I didn't get to tell the story yesterday of how she came to join us 8 weeks early....at about 1:30pm, after a quiet day up until then, I started having moderate lower back pain. I figured it was nothing, but remembered that back pain was one of the things I'd been warned about, so I called a nurse. We put the baby on the monitor, and found that her heart rate was periodically dipping down -- like, WAY down, in to the 80's. Within 10 minutes, the  doctor on call was in my room.
 

"You need to have your baby."
"Now?"
"Now.  Call your husband, get him down here. This kid is not going to tolerate labor at all. We're going to need to do an emergency cesarean. I'm going to go let the nursery know, and prep for surgery. I'll see you in the operating room in 15 minutes."
Jake made it to the hospital 7 minutes from the time I called him. Even so, he was chasing after us, pulling an scrubs in the hallway as they wheeled me in to the OR.

By 3:45, we had had a very successful emergency cesarean section. The baby came out with a fierce little cry, but quickly got tired trying to breathe on her own. She was intubated overnight, extubated this morning, and is doing very well on her own now.

Of course, our medical team is incredible, and they've been doing an amazing job with her. They say she is quite the little rock star.
The neonatal intensive care unit here is SO COOL. They baby has her very own private room, which is attached to our very own private room, which has a queen-sized bed in it. We will be allowed to stay here until she is ready to come home with us.

She is the smallest baby I've ever seen in real life at 3 pounds 14 ounces, but is easily the most beautiful thing I've ever laid eyes on. I'm still recovering from surgery, but hanging in there alright. We are very much looking forward to being able to hold her this afternoon.